Tony and I met with Dr. B yesterday and it went very well. Dr. B explained to us the 5 general categories of why people can't get pregnant - problems with: eggs, sperm, tubes, uterus, endometriosis.
He went through our entire history of all of our tests - sperm is good, tubes are clear, uterus is shaped normally, eggs can be fertilized in a petri dish even though there is a diminished quantity of them appropriate to my age, hormones are not terrible, so the last thing that has never been tested for is endometriosis. He said that even though my CA 125 test came in low, he still thinks there is a 60% chance or better that I have the disease. He's had patients with a low CA 125 have the worst cases of endo he's ever seen, and he's had women with high CA 125 levels having no endo. The only way to know for sure is with surgery. If he were a betting man he would lean towards some endo in my case, but he cannot guarantee it. He thinks there is a strong possibility that it is creating inflammation that is preventing the sperm from fertilizing my eggs. He even talked about the example of how a lot of women get pregnant after the HSG tube test when they run the dye through the tubes. He said it isn't necessarily because the dye opened the tubes, but because the dye running through the uterus changes the PH of the uterine environment and it may flush out some inflammation. Very interesting.
He went over our options again:
1) have surgery to rule in or out the endo
2) IUIs
3) IVF with my own eggs
4) FET with one embryo
5) DE cycle with same donor
6) DE cycle with new donor
We went over all of the pros and cons of each one. He said that the endo may or may not be affecting the implantation of our embryos. He said that it is just assumed that our DE cycle didn't work because of egg quality, but that it may not have been the case. There could be endo causing a problem. He explained again that he thinks RMA triggered our donor too soon and that if we were to use her again he'd use different drugs and cook her more slowly. He says we can go ahead and do another donor cycle without having the endo surgery, but it's up to us. He does wonder why Dr. W didn't go ahead and do the lap and look for endo when I underwent the hysteroscopy for the polyp removal. He would've done so since he was already in there. He again expressed that it's a philosophical difference between the 2 clinics. They are in the business of IVF, and he is more interested in finding the root cause of infertility. He didn't put RMA down at all, he said that both Dr. M and Dr. W are great doctors, they just do things differently.
Tony hasn't yet absorbed all of the information yet, nor mulled it over completely (as Erin knows very well it takes him much longer to process), however we have agreed to go ahead and schedule the surgery. It can always be canceled. I'll call on Monday to schedule it for mid May. I know that I want to do everything I can to ensure that if we do another DE cycle we've crossed all our t's and dotted all our i's. I can't do it before May because I've got to pass my PMP exam. Although my exam is scheduled for 4/19, I have a feeling I may be pushing it out a couple of weeks as I just do not feel ready yet.
We've ruled out IVF with my own eggs, but I'm thinking that we will do the surgery, then do a few IUIs, and then a new DE cycle. I am going to contact our donor and see if she would consider donating for us again. I haven't heard from her in a couple of months and for all I know she is pregnant again. I know she wanted to try for another baby soon so that her kids would be less than 3 years apart. We aren't in a hurry for the DE cycle. That's the cool thing about that, I can be 50 years old! Although I don't really want to be, haha.
So next step is surgery - mid-May - I think.
6 comments:
Kelly, I like the idea of finding the cause rather than just throwing potential solutions at the problem. Sounds logical enough. Have you done any other research on endo and infertility?
Good luck with the exam. Glad T was with you for the appt.
Glad the appt went well. Sounds like your RE is very organized. I don't know if I should mention this, but my RE (when I brought up the endo question) said OBs love to blame endo for everything, but in his experience it really doesn't affect pregnancy at all. FWIW.
But if I were you I would totally do the surgery - I had it done about 12 years ago (because I was having bleeding problems) and it was no big deal. For me there was no cutting, they gave me local anesthesia and it was about the same pain as getting an egg transfer. I think it lasted about 30 minutes, they said I had the worst case they'd ever seen. Whatever that means.
Good luck to you whatever you decide - rooting for you!
So glad the appointment went well. I like your train of thought make sure all The "i" are dotted and all the "t" are crossed. I had the surgery 12 years ago, I had horrible bleeding and it wasn't bad at all. I will continue with prayers and good thoughts your way......for the surgery and for your test in April too! :0)
Erin - I've just started the research on endo and infertility this weekend, but didn't spend much time on it. I do know several women with endo who are unable to get pregnant.
Musicmakermomma - I'm sure that different doctors have different opinions on endo, but what I do know is that I've never even had a chemical pregnancy, so either my eggs are so bad they die as soon as they are fertilized, or my body is somehow preventing the sperm from fertilizing, or it is preventing implantation. I guess I tend to believe that if it were just bad eggs that I would at least be able to get pregnant and then miscarry. I've seen several over 40 year olds who get pregnant every 6 months, but then miscarry due to bad eggs. We'll see when the doctor goes in for a look! I'm not convinced I have endo since I have no pain, but I know people who have it with no symptoms too. Who knows!
Exciting! You will be getting yours done right after mine! I wish we could "convalesce" together! It would be a heck of a lot more fun. Mike is by far the best nurse. He tends to stay far far away from me when I'm recovering from surgery. Like he thinks it's catchy or something...grr! ;0
I'm still excited to see what they find though. If you do have it, then surgery can be a huge benefit!
Hey! If you do have it, maybe you can join me in the end diet! Ha ha!
But seriously, I am glad you are getting a new opinion. It can never hurt to have more people checking you over to see if others have missed something. I thought what he said about the inflammation was very interesting too. That is sorta the point of this whole endo diet in the first place. To reduce inflammation.
I wonder if by the time I'm old they will have figured this all out. I can only hope and pray that any future daughters I have will never have to suffer through this as we have!
Hugs!
Kacy
Meant to say Mike is by far NOT the best nurse...ha ha!
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